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A U.K. Court Ruled To Take Their Baby Off Life Support, But They Kept Fighting

In August 2016, Chris Gard and Connie Yates welcomed their son, Charlie, into the world. They did not know that lower than a 12 months later, they’d be preventing to maintain him alive.

Just some weeks after Charlie was born, his well being began taking a flip for the more serious. “We took him into hospital at eight weeks outdated and none of us have been anyplace close to house since,” his mother and father wrote on their marketing campaign web site “Charlie’s Fight.” Their little boy suffers from a uncommon genetic situation referred to as mitochondrial DNA depletion syndrome, which progressively weakens tissues within the muscle, liver, or each the muscle and mind. It sometimes leads respiratory failure and demise. Few folks with the situation survive previous childhood and adolescence.

The now 10-month-old cannot breathe with no ventilator and might’t transfer his arms or legs on his personal. Due to his quickly declining situation, his mother and father misplaced a U.Okay. Supreme Court docket enchantment to maintain him on life assist.

In April, the London’s Nice Ormond Road Hospital, the place Charlie is being handled, requested the courtroom to rule that Charlie’s ventilator be eliminated due to his prognosis.

Chris and Connie, nevertheless, argued that their little boy’s life might be saved by touring to a health care provider within the U.S. who’s agreed to offer Charlie an experimental remedy referred to as nucleoside bypass remedy.

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