In August 2016, Chris Gard and Connie Yates welcomed their son, Charlie, into the world. They did not know that lower than a 12 months later, they’d be preventing to maintain him alive.
Just some weeks after Charlie was born, his well being began taking a flip for the more serious. “We took him into hospital at eight weeks outdated and none of us have been anyplace close to house since,” his mother and father wrote on their marketing campaign web site “Charlie’s Fight.” Their little boy suffers from a uncommon genetic situation referred to as mitochondrial DNA depletion syndrome, which progressively weakens tissues within the muscle, liver, or each the muscle and mind. It sometimes leads respiratory failure and demise. Few folks with the situation survive previous childhood and adolescence.